Modifies provisions relating to medical testing for pediatric rare diseases
HB 1589 requires Missouri's Department of Health and Senior Services to annually gather input from genetic screening research organizations (like SeqFirst, GUARDIAN Study, and Early Check) and prepare a report for the legislature by December 31 each year. The report must summarize findings and recommend updates to the state's newborn screening program for pediatric rare diseases - defined as rare childhood-onset genetic conditions affecting fewer than 200,000 people in the U.S. This process ensures screening practices align with current medical research and best practices. The bill directly affects the department's operations and future screening protocols for infants with rare genetic conditions.
Bill status
in committee
1 of 4 stages cleared
Introduction
Feb 2025
Committee Review
Floor Vote
Governor
Introduced Feb 28, 2025
Last action May 15, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
3
Key actions
0
Committee
1
May 15, 2025
Committee
Referred: Emerging Issues(H)
lower
Feb 28, 2025
Introduced
Introduced and Read First Time (H)
lower
1 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Rudy Veit
RRepublican
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