Health: diseases; rare disease advisory council; create. Amends 1978 PA 368 (MCL 333.1101 - 333.25211) by adding secs. 5135 & 5135a.

HB 4169 creates a Rare Disease Advisory Council within Michigan's Department of Health to advise on research, diagnosis, and treatment of rare diseases. The council, composed of 12-18 members including physicians, patients, caregivers, insurers, researchers, and industry representatives, must identify policy priorities to improve access to care and reduce discrimination for individuals with rare diseases (defined as affecting fewer than 200,000 people in the U.S.). Key duties include researching cost-effective treatments, sharing best practices from other states, and developing a public webpage with rare disease resources by March 2026. The bill establishes a formal advisory body but does not change existing laws or funding.