CONGRESS: Memorializes the United States Congress to work towards a cure for Sanfilippo Syndrome
This bill directs the United States Congress to collaborate on finding a cure for Sanfilippo Syndrome, a rare genetic disorder affecting children. The resolution calls for legislative action and support rather than establishing new funding or regulatory requirements. It was recently passed by the House of Representatives with unanimous support. The primary effect is a formal statement of intent to address this specific medical condition.
Bill status
passed
3 of 5 stages cleared
Introduction
May 2026
Committee Review
House Passage
Jun 2026
Senate Passage
Governor
Introduced May 31, 2026
Last action Jun 3, 2026
Maddy AI version diff · 1 comparison
What changed between versions
HR401 Original
→
HR401 Enrolled
·
3 edits
·
Jun 1, 2026
MINOR
The bill was finalized for enrollment, adding the names of additional co-sponsors and removing the original draft number. The substantive policy content, including the memorial to Congress for a cure for Sanfilippo Syndrome and the specific details regarding the Guillory family, remains unchanged.
Scope change
The scope of the bill's subject matter and applicability did not change; only the procedural status and list of sponsors were updated.
TECHNICAL
Added the names of additional Representatives (Billings, Boudreaux, Butler, Chassion, Coates, Egan, Knox, Miller, Spell, and Taylor) to the list of co-sponsors.
Removed the original bill identifier 'HLS 26RS-6292' and replaced it with the final enrolled status.
Updated the document title from 'ORIGINAL' to 'ENROLLED' to reflect the bill's final passage.
Floor votes · House Jun 1, 2026
How they voted
91–0
Passed · 14 other
Total votes 105
Jun 1, 2026
D
Democratic33
87% Yea
R
Republican72
86% Yea
Vote distribution
All Yea
All Nay
Mixed
No data
Full legislative history
Actions timeline
Total actions
5
Key actions
1
Committee
0
Jun 1, 2026
Lower · Passed
Read by title, amended, roll called, yeas 89, nays 0. The resolution was adopted.
lower
1 primary · 13 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Beau Beaullieu
RRepublican
Co
Alonzo Knox
DDemocratic
Co
Annie Spell
RRepublican
Co
Beth Billings
RRepublican
Co
Doyle Boudreaux
RRepublican
Co
Dustin Miller
DDemocratic
Co
Jacob Landry
RRepublican
Co
Kim Coates
RRepublican
Co
Marcus Bryant
DDemocratic
Co
Peter Egan
RRepublican
Co
Rhonda Butler
RRepublican
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