DPH-NEONATAL DIABETES REGISTRY

Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Requires the Department of Public Health to develop and implement a neonatal diabetes mellitus registry pilot program. Requires the Department to create an electronic registry to track glycosylated hemoglobin levels of persons with monogenic neonatal diabetes. Requires physicians and other healthcare providers treating a patient with diabetes mellitus with onset before 12 months of age to report the occurrence of all such cases to the Department within 30 days after diagnosis. Requires clinical laboratories performing glycosylated hemoglobin tests for patients with diabetes mellitus with onset before 12 months of age to report the results of each test that the laboratory performs to the Department within 30 days after performing the test. Provides that the Department shall create for dissemination to physicians, healthcare providers, and certain clinical laboratories a consent form. Provides that the physician, healthcare provider, or laboratory shall obtain the informed consent of the patient to the disclosure of the patient's information. Sets forth consent requirements and confidentiality provisions. Provides that the Department shall allow access of the registry to neonatal diabetes mellitus research institutions. Provides that these provisions are repealed on December 31, 2012. Effective immediately.