RARE DISEASE DAY
Summary
Declares March 5, 2025 as Rare Disease Day in the State of Illinois in order to raise awareness of rare diseases, support individuals and families who struggle with rare diseases, bring attention to the need for research and funding to support the discovery and development of therapies designed to treat and potentially cure rare diseases, and support the continued work of the Illinois Rare Disease Commission.
Bill status
passed
3 of 5 stages cleared
Introduction
Feb 2025
Committee Review
May 2025
House Passage
May 2025
Senate Passage
Governor
Introduced Feb 24, 2025
Last action May 31, 2025
Floor votes
How they voted
This bill passed the House by voice vote (no roll call recorded).
Full legislative history
Actions timeline
Total actions
9
Key actions
2
Committee
3
May 31, 2025
Lower · Passed
Resolution Adopted
lower
May 1, 2025
Lower · Passed
Recommends Be Adopted Public Health Committee; 009-000-000
lower
Apr 22, 2025
Committee
Assigned to Public Health Committee
lower
Feb 25, 2025
Committee
Referred to Rules Committee
lower
1 primary · 3 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Sonya Harper
DDemocratic
Co
Bill Hauter
RRepublican
Co
Jason Bunting
RRepublican
Co
Patrick Sheehan
RRepublican
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