HB 3494 Illinois House · 104th Regular Session

HEALTH DATA PRIVACY ACT

Summary
Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.
Bill status in committee 1 of 4 stages cleared
Introduction
Feb 2025
Committee Review
Floor Vote
Governor
Introduced Feb 7, 2025 Last action May 30, 2026
Floor votes

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Full legislative history

Actions timeline

Total actions
51
Key actions
2
Committee
6
Apr 17, 2026
Committee
Rule 19(a) / Re-referred to Rules Committee
lower
Feb 17, 2026
Lower · Passed
Approved for Consideration Rules Committee; 003-002-000
lower
Apr 11, 2025
Committee
Rule 19(a) / Re-referred to Rules Committee
lower
Mar 19, 2025
Lower · Passed
Do Pass / Short Debate Judiciary - Civil Committee; 013-007-000
lower
Mar 11, 2025
Committee
Assigned to Judiciary - Civil Committee
lower
Feb 18, 2025
Committee
Referred to Rules Committee
lower
1 primary · 33 co-sponsors

Sponsors