HB 952 Hawaii House · 2025 Regular Session

RELATING TO PARKINSON'S DISEASE RESEARCH.

Summary

Establishes the Parkinson's Disease Research Collection Database to be administered by the State Health Planning and Development Agency, to house a collection of data on the incidence of Parkinson's disease in the State. Establishes the Parkinson's Disease Research Collection Database Advisory Committee. Requires the Agency to create a Parkinson's disease research collection database webpage by 1/1/2026, and submit annual reports to the Legislature. Appropriates funds. Effective 7/1/3000. (SD1)

Issues: ✓ Healthcare

Bill status passed 3 of 5 stages cleared

Introduction

Jan 2025

Committee Review

Mar 2025

House Passage

Feb 2025

Senate Passage

Governor

Introduced Jan 21, 2025 Last action Mar 21, 2025

Maddy AI version diff · 2 comparisons

What changed between versions

HB952_HD1 → HB952_SD1 · 7 edits

MODERATE

The bill was amended to transfer administration of the Parkinson's disease research database from the Department of Health to the State Health Planning and Development Agency (SHPDA). This change also updated related roles (Director to Administrator), added specific requirements for mandatory reporting and patient opt-out procedures, and modified the committee composition to include additional stakeholders like patient advocates and physician informaticists.

Scope change

The bill's scope changed by shifting administrative authority from the Department of Health to the State Health Planning and Development Agency, which alters which agency is responsible for managing the database and related reporting requirements.

SCOPE

Administrative authority transferred from the Department of Health to the State Health Planning and Development Agency (SHPDA), changing the lead agency responsible for the database.

REQUIREMENT

Added mandatory reporting requirements for all patients diagnosed with Parkinson's disease or related conditions, with a specific opt-out provision requiring written consent to decline participation.

Expanded the advisory committee composition to include nine members with specific requirements, adding patient advocates, population health researchers, and physician informaticists to the existing medical professionals.

Added requirement for the agency to create a public webpage for the database by January 1, 2026, and submit annual reports to the legislature with demographic data.

Added requirement for the agency to promulgate a coding system that removes identifying patient information to ensure data privacy.

DEFINITION

Added new definitions for 'Agency' and 'Administrator' to reflect the transfer of authority to the State Health Planning and Development Agency.

ENFORCEMENT

Clarified that the agency may implement reporting requirements through a bulletin exempt from standard rulemaking processes, streamlining the enforcement mechanism.

Floor votes

How they voted

This bill passed the House by voice vote (no roll call recorded).

Full legislative history

Actions timeline

Total actions

Key actions

Committee

Mar 21, 2025

Committee

Reported from HHS (Stand. Com. Rep. No. 1262) with recommendation of passage on Second Reading, as amended (SD 1) and referral to WAM.

upper

Mar 17, 2025

Upper · Passed

The committee(s) on HHS recommend(s) that the measure be PASSED, WITH AMENDMENTS. The votes in HHS were as follows: 5 Aye(s): Senator(s) San Buenaventura, Aquino, Hashimoto, Keohokalole, Fevella; Aye(s) with reservations: none ; 0 No(es): none; and 0 Excused: none.

upper

Mar 11, 2025

Upper · Passed

The committee(s) on HHS has scheduled a public hearing on 03-17-25 1:00PM; Conference Room 225 & Videoconference.

upper

Mar 4, 2025

Committee

Referred to HHS, WAM.

upper

Mar 4, 2025

Introduced

Received from House (Hse. Com. No. 132).

upper

Feb 28, 2025

Lower · Passed

Passed Third Reading with none voting aye with reservations; none voting no (0) and Representative(s) Cochran, Pierick, Templo, Ward excused (4). Transmitted to Senate.

lower

Feb 21, 2025

Lower · Passed

The committee on FIN recommend that the measure be PASSED, UNAMENDED. The votes were as follows: 12 Ayes: Representative(s) Yamashita, Takenouchi, Grandinetti, Hussey, Keohokapu-Lee Loy, Kitagawa, Kusch, Lamosao, Miyake, Morikawa, Templo, Reyes Oda; Ayes with reservations: none; Noes: none; and 4 Excused: Representative(s) Holt, Lee, M., Alcos, Ward.

lower

Feb 13, 2025

Committee

Reported from HLT (Stand. Com. Rep. No. 577) as amended in HD 1, recommending passage on Second Reading and referral to FIN.

lower

Feb 12, 2025

Lower · Passed

The committee on HLT recommend that the measure be PASSED, WITH AMENDMENTS. The votes were as follows: 9 Ayes: Representative(s) Takayama, Keohokapu-Lee Loy, Amato, Chun, Marten, Olds, Takenouchi, Alcos, Garcia; Ayes with reservations: none; Noes: none; and Excused: none.

lower

Jan 23, 2025

Committee

Referred to HLT, FIN, referral sheet 3

lower

Jan 23, 2025

Introduced

Introduced and Pass First Reading.

lower

Jan 21, 2025

Introduced

Pending introduction.

lower

19 primary · 0 co-sponsors