RELATING TO RARE DISEASES.
Summary
Establishes the rare disease advisory council to increase awareness and effective medical intervention for rare diseases. Establishes the rare disease advisory council special fund. Requires DOH and DOE to incorporate the importance of annual physical examinations for children in programs and literature. Amends the insurance code to include coverage for individuals with velocardiofacial syndrome and other genetic disorders. Exempts from cost sharing. Appropriates funds.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jan 2025
Committee Review
Floor Vote
Governor
Introduced Jan 21, 2025
Last action Jan 23, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
3
Key actions
0
Committee
1
Jan 23, 2025
Committee
Referred to HLT/EDN, CPC, FIN, referral sheet 3
lower
Jan 23, 2025
Introduced
Introduced and Pass First Reading.
lower
Jan 21, 2025
Introduced
Pending introduction.
lower
9 primary · 0 co-sponsors
Sponsors
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