Neurofibromatosis Research Grants
Summary
Neurofibromatosis Research Grants; Creates Neurofibromatosis Disease Grant Program within DOH; provides purpose program; requires, subject to appropriation, program to award certain grants; provides requirements for grant applications; requires Rare Disease Advisory Council & peer review panels to establish & follow specified guidelines; prohibits members of council & panels from participating in certain discussions & decisions; authorizes certain appropriation funds to be carried forward.
Bill status
died
1 of 4 stages cleared
Introduction
Nov 2025
Committee Review
Floor Vote
Governor
Introduced Nov 19, 2025
Last action Mar 13, 2026
Maddy AI version diff · 1 comparison
What changed between versions
H 497 Filed
→
H 497 c1
·
2 edits
MINOR
This bill was amended to change the bill title from 'HB 497' to 'CS/HB 497' (Committee Substitute), indicating it has been revised by a committee. The most significant substantive change is the removal of a specific funding mandate of $5 million annually, replacing it with language that grants the program authority to award grants only 'subject to legislative appropriation.' This change shifts the program from having a guaranteed funding level to one that depends on future legislative approval of funds.
Scope change
The bill's scope regarding funding authority was modified to make the program's operation contingent on annual legislative appropriations rather than guaranteeing a specific dollar amount.
FISCAL
The specific mandate for an annual recurring appropriation of $5 million was removed and replaced with language stating the program shall award grants 'subject to legislative appropriation,' making funding dependent on future legislative approval.
TECHNICAL
The bill title was updated from 'HB 497' to 'CS/HB 497' to reflect its status as a Committee Substitute version, and the bill summary was slightly revised to remove the word 'creating' before 'the Neurofibromatosis Disease Grant Program' and add 'requiring, subject to appropriation, the program to award certain grants'.
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
15
Key actions
5
Committee
9
Feb 12, 2026
Lower · Passed
Now in Health & Human Services Committee
lower
Feb 12, 2026
Committee
Referred to Health & Human Services Committee
lower
Feb 11, 2026
Lower · Passed
Reported out of Health Professions & Programs Subcommittee
lower
Feb 11, 2026
Lower · Passed
Favorable with CS by Health Professions & Programs Subcommittee
lower
Feb 9, 2026
Lower · Passed
Added to Health Professions & Programs Subcommittee agenda
lower
Nov 24, 2025
Lower · Passed
Now in Health Professions & Programs Subcommittee
lower
Nov 24, 2025
Committee
Referred to Health & Human Services Committee
lower
Nov 24, 2025
Committee
Referred to Health Care Budget Subcommittee
lower
Nov 24, 2025
Committee
Referred to Health Professions & Programs Subcommittee
lower
1 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Karen Gonzalez Pittman
RRepublican
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