AN ACT CONCERNING DIRECT-TO-CONSUMER GENETIC TESTING.

HB 5128 gives Connecticut consumers legal ownership of their genetic test results and biological samples (like saliva or blood) collected by direct-to-consumer genetic testing companies. It requires companies to obtain clear, active consent before collecting, using, or sharing genetic data, and to disclose their data policies prominently online. Companies must get separate consent for sharing data with third parties, using data for new purposes beyond the original test, or retaining samples after testing. The law ensures consumers control how their genetic information is handled, with exceptions only for court orders or subpoenas.