Sickle Cell Disease Community Outreach & Services

The act creates the Arie P. Taylor sickle cell disease outreach program (outreach program) in the department of public health and environment (department). To implement the outreach program, the act requires the department to contract with one or more community-based nonprofit organizations (outreach organizations) to provide outreach and support services in the community to individuals living with sickle cell disease and their families. The department is required to solicit applicants and administer the outreach program. On or before January 1, 2025, the department is required to contract with one or more outreach organizations to implement the outreach program and to give priority to outreach organizations with experience in providing services and support to the sickle cell community and that meet other criteria in the act. The outreach program may include informal counseling and health guidance, direction and support to individuals and their families in locating and accessing services in the community, outreach concerning activities and programs available to individuals and families living with sickle cell disease, peer support and referrals, advocacy regarding the interests of the sickle cell disease community, referrals for screening, and other services and support identified by the department. The department is required to approve the services provided through a contract and may consult with the university of Colorado school of medicine's sickle-cell anemia treatment and research center to identify needed services and supports. Prior to the expiration of a contract, the outreach organization is required to prepare and submit a written report to the department describing the impact of the outreach program provided under the contract, and the department shall provide the report to the legislative health and human services committees or their successor committees. The act repeals the outreach program, effective July 1, 2030. The act appropriates $200,000 from the general fund to the department to implement the outreach program. APPROVED by Governor June 3, 2024 EFFECTIVE June 3, 2024(Note: This summary applies to this bill as enacted.)